Mohs Nose Tales of Woe

A bird shitting on you equals good luck, right? I hope so because my Mohs surgery to remove a basal cell carcinoma from the right side of my nose – running parallel along my bridge, an unfortunate location – is scheduled for tomorrow morning.

I was talking with a friend in the parking lot after dropping our boys off at camp this morning and a bird shit on me. Just like that. I looked up at my friend and said, “a bird just shit on me” and we laughed. What else was I supposed to do? I got a tissue from my car, wiped the shit off my shirt and then my friend was kind enough to share a tale about a bird shitting on her in an outdoor bar once upon a time, which I really appreciated, even if it wasn’t true. At least the bird didn’t shit on my face because I don’t care what anyone says, there is no way that could be considered good luck. In fact, I’m sure it would be bad luck. Almost as bad as this fucking basal cell carcinoma – which certainly isn’t going to kill me, but apparently, it can do some pretty ugly damage if not fully removed, and the process to fully remove it is not something you should ever look up on the internets – right smack in the middle of my face. But bird shit on my shirt? Ok, I’ll take it as a sign of good luck.

If you’re going to get skin cancer – let’s face it – get it? – let’s FACE IT – basal cell carcinoma is the kind you want to get. I’m lucky. It’s probably not even really cancer, they just call it that to scare the living shit out of you. Nevertheless, I realize it will be important for me to be more vigilant about seeing my dermatologist regularly from here on out, and I will, because apparently once you get one of these fuckers, your chance of getting another one – or another kind, maybe a not so good kind – increases.

As I get ready for tomorrow, however, I admit I’m feeling pretty wimpy about it. I might have researched Mohs a little too thoroughly and also the fucker is in the middle of my face. Did I tell you that already? I’m not looking forward to the anesthesia shots I’ll be getting in my nose and surrounding area. I wish I hadn’t read about that part. People on the internets make it sound like a horribly unbearable thing, worse than giving birth and I know that can’t be true because I’ve done that. Twice. I’m sort of worried about the surgeon being all up in my face too. I hate that. I mean really, really hate it. I’m mostly worried about how much of my nose will have to be cut away and whether the Mohs-trained surgeon is skilled enough to handle the reconstruction he has mapped out or if I should have lined up a plastic surgeon for that part. Damn you, Google. I think I’m realistically prepared for what things will be like immediately following, but I’m pretty surprised by how worried I am about the long term cosmetic results. It’s not like me to care so much, but it IS my face, after all, so I’m giving myself a pass for having these uncharacteristic vain concerns. I kind of wish I could be asleep for the next week or so, or have a glass of wine at least, but I’m just going to have to suck it up and I will. I’m awesome in a crisis.

So anyway, thanks for letting me ramble on about this a little. I’m really not freak-out-scared, just kind of depressed-scared. It will pass. Always does. And true to form, I’m expecting THE WORST so I’ll be fully prepared for when it happens, or relieved when it doesn’t, whichever. I did talk to my primary care doctor a little while ago and I feel better knowing he thinks I’m in good hands and all will be well.

True to form once again, I spent most of the day cleaning my house with my one and only cleaning companion, Bruce Springsteen, turned up LOUD so I couldn’t think, and also ignoring the phone. Sorry if that was you. I’m pretty much in full-on INFJ mode right now and I just want it to be over. I’ll keep you updated on how it goes, ok?

Oh, and people? Don’t forget to wear your damn sunscreen and your hat too!

A Week (Or Two) In The Life, Part Two: A Sunday In DC

Part 2

A Sunday In DC

In early May I made an unplanned visit to a black church in DC – a full six weeks before the Charleston murders. This is the story of what happened that day. I can’t stop thinking about it.

The weekend before my reading in the Listen To Your Mother show in Baltimore, a few of us went down to DC to support our fellow LTYM readers and to witness their stories being shared at the National Geographic building. The background to this part of the story is the savage murder of Freddie Gray in late April by Baltimore police officers and the days of protest, uprising and additional police brutality that followed.

 Anyway, I arrived for the LTYM DC show quite a bit earlier than everyone else and it was a gorgeous day, so I decided to do some walking in the neighborhood while I waited. As I walked down M St, NW, I heard the sounds of a gospel choir pouring out of the doors of a church. An impressive gothic revival edifice towered above me and I noticed a sign in the small patch of grass in the front lawn. Metropolitan AME Church. I stopped at the wrought iron gate separating me from what was happening inside and I listened to more from the choir. I let the good news, the praise, the optimism wash over me until the juxtaposition of that joy coming from inside the church and the ongoing circumstances of such pain and injustice outside, most recently in Baltimore, began to unsettle and confuse me. Suddenly, a man who had been standing inside the gate asked if he could help me. I didn’t know what to say, so I just told him the truth. I told him I was walking in the neighborhood while waiting for some friends and I was enjoying the sounds of the church choir. He opened the gate and suggested I go inside, so I did. I walked up the front steps and stood there a minute, listening, feeling out of place, feeling like I was intruding, unsure if I should stay, but not wanting to leave either. An older church lady was sitting right inside the door and gestured for me to join her. I went to her side and she greeted me with a warm, “Good morning”. She, too, asked if she could help me and I told her the same thing I’d told the man outside, she welcomed me and we began a conversation.

I learned that Metropolitan AME Church is the oldest AME church in Washington, DC, founded in 1838. The church is shrouded in history with noteworthy visiting speakers such as Frederick Douglas, a regular attendee whose funeral was also held there in 1895. The building itself is on the National Register of Historic Places. She asked if I was familiar with the AME church and I told her yes, a little, as I’d had a supervisor back in the late 80’s who’d belonged to a large AME church in Baltimore. My boss had talked about her church family often, it was an integral part of her life. We talked a bit more about the history of the church. She then told me the service would soon be ending, and encouraged me to climb the grand staircase to see the sanctuary and to greet the pastor if I wanted. I hesitated, she took me by the hand, and walked with me up the stairs, the choir’s last shouts of praise beckoning.

Pastor William Lamar, IV was giving his closing remarks by the time we reached the top. The church lady and I stood together over to the side, listening. I looked around the vast sanctuary filled with hundreds of worshippers sitting in rows on shiny wooden pews, anchored by the pipe organ and choir loft. There it was again, that unmistakable sense of joy – or something – in the room. I was the only white person there. It was a strange feeling. Not one I’m used to experiencing. As the service ended, people started to line up to greet Pastor Lamar, a tradition very familiar to me as we’d done the same in my former church. The church lady encouraged me to get in line, to greet the pastor. I was reticent, I didn’t want to cause discomfort. Or maybe the truth is I was the increasingly uncomfortable one. Or both. I don’t know. She took me by the hand and placed me in the line behind a few of the congregants. I stayed in the line, but I kept moving back, giving up my position, encouraging church members to move ahead of me, many of them greeting me with smiles or nods. Finally, the last in line, I approached Pastor Lamar and I shook his hand, introducing myself. He greeted me in kind, asked what had brought me to Metropolitan that morning and I told him. He thanked me for coming, encouraged me to come back for a full service sometime, then he asked if there was a prayer he could offer on my behalf. I didn’t expect that at all, I looked down and part of me wanted to run like hell in the opposite direction. Maybe it was my own still heavy church baggage rearing its ugly head. Or maybe something deeper, more confusing.

You’ll be glad to know I didn’t run away, but I did think, whoa, Pastor, I don’t even know how I ended up standing here before you, ok? I feel like I want to crawl out of my skin and I’m scared to death I’m going to say something wrong. Or that you’ll know how wrong I am just by looking into my eyes. I was walking along, your choir was singing, your congregants were kind, and now here I am. The truth is I’m sorry I didn’t listen sooner. I’m sorry I’ve been blind. I’m sorry I’ve turned my head away. It’s not ok. The truth is I’m realizing what’s happening in our country isn’t new, this has been the way things have been since the beginning, but I didn’t see it before now. The truth is I’ve been crying on and off for days about Freddie Gray, the uprising in Baltimore, and the systemic privilege I’m realizing I enjoy just because I’m white, to the point where my husband is worried about me, and I don’t know what to do. I don’t even know what NOT to do to make sure I don’t cause more harm. I want to be part of making things right, but I don’t know how. The truth is I’ve been feeling this terrifying and overwhelming urge to hit the streets, to do what I don’t know, because like I said, I DON’T KNOW WHAT TO DO. Or maybe I do know but I’m afraid to do it.  I most certainly know now that something is terribly wrong. The truth is every time I see a black person this week – stranger, friend, male, female, young, old – I start to cry. AS IF you need my tears. NO! You need my action. I’ve been remembering all sorts of things about growing up and being white, I’ve been so unglued, so immobilized by my own white shame, projecting all over the place, and I swear I almost walked up to a black man I didn’t know in HomeGoods to apologize, or something crazy like that. Yes. Yes, I did. AS IF I have the right to do such a thing or to invade his space with my bullshit. AS IF a pitiful apology from me would somehow change a damn thing for him. I’ve been drowning in my own feelings about this ugly reality you have to live with every single day. The truth is I hurt for all people of color in this country in a way I never have before and I’m scared for you, I’m scared for us all. I’m scared to put myself at risk too, its not an all the time conscious awareness, but it’s there. I hate this. I don’t understand how you live with this over and over and over again. And I don’t understand how I can do better, or help in a way that will matter.

But anyway, all I keep thinking this week is please stay inside until we figure out how to make this stop, please don’t drive, please stay away from the police. No! We have to make this monstrous immoral filth stop, not stop you from fully living your lives. But my hair stands on end every time I see a police officer pull over a black driver. A few days ago, I automatically pulled off the highway and circled back around, to watch over what was happening, just in case, because you are in danger. AS IF you didn’t know that.

I know, I’m a MESS. And don’t worry, I didn’t say any of that to Pastor Lamar. Thank God. Still, I’m convinced he saw right through me, this middle-aged white lady standing before him, so obviously without a freaking clue and so obviously in desperate need of SO many of them. I finally took a deep breath and said, “Will you please pray for me to be a good listener,  and also that I might act wisely and courageously on what I hear?” Pastor Lamar took his own deep breath and said, “Ah, so thats why you’re here. Because that’s what I needed to hear this morning. Lets pray.” So he put his hands on my shoulders and we bowed our heads down together and he prayed for us. Amen.

Memories of my visit there have been an especially strong and constant presence since Charleston. The open doors. Stories being lived, stories needing to be heard. The freely offered welcome. The opportunity to see my own reflection in the context of their joy – Joy with a capital J – against a continuous backdrop of the burden and oppression they live with.

Yes, and what am I going to DO with it?

The importance of interrupting the lie, the fantasy – so I might listen, learn, empathize, and WAKE UP – has smacked me hard across the face. I’ve decided what I can DO is get a clue, do the work. White people’s work. I don’t know exactly what that is yet, but I’m going to find out. I’m pretty sure it has something to do with not drying my tears, but honestly examining them. Not letting my discomfort paralyze me, but using it to build a bridge for my neighbors to walk over. To create space for them to take what belongs to them. Freedom from fear, for one thing. Freedom to live. And speaking up whenever I notice someone – including me – trying to block that bridge, even if indirectly. Mostly, I think that means Im supposed to be brave enough to start conversations about this with white people. It’s time.

I’ve imagined, more than once, the very real possibility that what happened in Charleston could have happened in DC at Metropolitan AME Church, a white stranger walking into a historic black church – not by chance like I did, because let’s face it, I doubt that happens much – to do premeditated harm, simply because of the meaning the black church holds in black communities. The thought of that kind of vulnerability rattles me and yet the national AME leadership has called for their churches to remain open and welcoming, even in the face of what amounts to nothing less than domestic terrorism. Can you believe that? Open doors. Room for all at the table. “God is the strength of my life; of whom – or what – shall I be afraid?” That kind of COURAGE and FAITH – in the face of unspeakable and repeated trauma – strengthens my conviction that we white folks are the ones who need to make this right by letting the TRUTH of the stories of black people – and our own biases – touch and teach and guide us in a new way. It’s our responsibility because we’re the ones who made it wrong and I can’t UNKNOW that. So I’m listening, and in the midst of many missteps, I’m trying to learn what to do – and what not to do. I’m unpacking all sorts of ugly crap in my own head and trying to find other white people with whom to process it. You might be surprised by how hard that is, finding trustworthy white people who want to talk about this. I’m trying to wake up my own little circle of white space, to unsettle it, to make it uncomfortable for us to go on in ways that dismiss the truth of our white privilege. No doubt, I will say and do a good bit of this work wrong, I already have. Still, I’m committed to growing through it. I’ll keep coming back, I won’t quit listening or learning or trying. I won’t give up, I won’t turn my head away again.

A Week (Or Two) In The Life, Part One: Charleston

Part 1

Charleston

I didn’t find out about the killings at Emanuel AME Church until 24 hours after they happened. And when I found out, I was immobilized. By what I’m not entirely sure, but it wasn’t shock. Too much has happened in the past year for me to be shocked anymore. Maybe I was immobilized because the absence of shock was shocking to me. I don’t know. But anyway, this horrific, heartbreaking thing happened. I felt grief, outrage, disgust, shame, but not shock. And I still don’t know what to say about it except this, and it isn’t enough:

A white young man committed a racially-motivated mass murder, an act of domestic terrorism, and I condemn it. He walked into a church prayer meeting and carried out his premeditated plan to murder the people in attendance solely because they were black, and precisely because they were in their black church. He murdered black people inside their church, the one place that is supposed to be safe, if there is any such place at all anymore. My inclination is to call this man’s actions evil, but I think it’s worse than that, more complex than that. I just don’t know what to call it. This man published his racist manifesto on the internet. He spoke his racist beliefs before he terrorized and murdered these people. He had family and friends who loved him, who thought he was “good”. Afterwards, he said he almost didn’t go through with it because the church people had been so kind to him. What in the hell is going on here? This is America. It’s 2015. How can this still be happening? I’m slowly waking up to an ugly truth. Systemic racism and white supremacy still exist – what happened in Charleston is not an anomaly – and I will not ignore it. Not anymore.

In my great confusion, discomfort, growing anger, sadness and awakening since the murder of Michael Brown last August, I’ve reached out to a few of my black women friends in the hopes of engaging in some sort of dialogue around racism and injustice. AS IF I have a clue. They’ve been kind and extraordinarily patient with me, but I’m not AT ALL proud to say I’ve been slow to realize that while this isn’t about me personally, this is OUR issue, you know, we white people. Its not my black friends’ job to educate me or to help me understand or to reassure me. Venting my discomfort and outrage to them doesn’t prove anything and it doesn’t absolve me of my responsibility in what’s happening in this country. It doesn’t lift their burden and I sure as all hell don’t want to make it even heavier. Its just that I don’t know what to do. Lately I feel like I don’t know much of anything at all, that everything I thought I knew was a lie, smoke and mirrors. The only thing I know for sure is that something is very, very wrong and if I’m not doing something to help bring attention to that, I’m part of the problem. I’m consciously listening and learning – maybe for the first time – so at the very least, I can try to empathize and to imagine what it must be like to be black in this country in 2015. I know now its my responsibility to educate myself and to take a good, hard look at myself and my own heart. Only then will I learn about the reality of my white privilege and how to use it to stand in solidarity with people who are rising up against injustice – people who have been doing it for years, for generations, while I didn’t notice – to amplify their voices, to help make space for them to be heard. Lasting systemic and institutional change is still past due. Our lives are intertwined. I’m consciously realizing I need to acknowledge, confront and chip away at MY OWN biases, understanding that while I will continue to make progress, those biases are probably so deeply entrenched by living in this society for 50 years, they may never be fully unlearned. I’ll have to work to confront them every single time I default to a learned reaction/response. It’s my responsibility to stay present in the discomfort that’s arising without letting it immobilize me – because that’s just another manifestation of my privilege, being able to check in and out, right? – and its my responsibility to speak up in my own circle of WHITE friends and family, to talk about what I’m learning, to help wake us up, to help pull them into the discomfort, to be part of the dismantling of these very real and present dangers, brick by brick, layer by layer – physical, emotional, spiritual – facing our brothers and sisters of color. To risk my comfort for real and lasting equity. Its my responsibility. Not in an attention-seeking, delusional, white savior way, not only during one horrific crisis after another, but as a fellow citizen who gives a damn, because it’s the right thing to do, day to day, until this is made right and forever. I admit I’m scared, but I sure as hell don’t have the kind of fear people of color have to live with every damn day.

I’m realizing there’s a fine line between making this turmoil I feel all about me and moving through it to do something constructive with it, to assist in the long road ahead. And I’m pretty sure the turmoil and discomfort I feel is meant to be an in-between kind of place – at least temporarily – of listening and learning before opening my mouth or taking action. I don’t know. But I do know that good intentions and words won’t mean squat if I don’t back them up with action at some point. So I keep coming back to what am I going to DO with all of this? Black lives matter. Black lives matter TOO. Its too bad we have to say it. But we do and I won’t stop saying it until this is made right. I’m learning that when we behave as if black lives don’t matter by failing to listen to, acknowledge, and empathize with their truths and experiences, failing to fully recognize their humanity and dignity, failing to empower their lives in the same ways white people have been privileged to enjoy, failing to defend their civil and HUMAN rights, failing to acknowledge our present condition (no matter how ugly), failing to learn our accurate history in this swirling mess of escalating inequality and injustice, and failing to assist in uprooting racist institutions and systems that continue to marginalize, oppress, and even kill black people, well, then, OUR lives don’t matter in the end either. It’s all or nothing. Or as my rock hero, Bruce Springsteen, used to say during his live shows in the 80’s, “nobody wins unless everybody wins”. That’s what I believe. Will I live it?

I’m grateful I’ve had access to so much good writing on the internet during this nightmare. I will not stop reading, listening, watching, amplifying, so I can learn to be an asset – not a liability – in the fight for racial justice and equity. I commit to supporting the change that must come, the change that IS coming, no matter how long it takes. And as I learn, I hope I will speak up more. ACT more. I intend to regularly share the voices of people of color, as I practice taking more risks myself. So, allow me to share this piece because it’s really good and it’s what prompted me to start getting over my fear about saying the wrong thing and to sit my butt down to write this:

http://www.chookooloonks.com/blog/say-something

Yes, when we know better, let’s DO better, let’s SAY something. If we have a social media presence, whether it’s on Facebook or Twitter or a blog, we can say something. We can take a stand against racism. We can scream that it’s not ok. We can wake each other up. No matter how clumsily we do it.

We can check out this syllabus and READ:

http://aaihs.org/resources/charlestonsyllabus/

We can follow some of these people on Twitter and amplify their voices:

@tanehisicoates

@BroderickGreer

@breenewsome

We can join an existing group to learn how we can be better partners in solidarity:

@ShowUp4RJ – Showing Up For Racial Justice – if you are white and you care about racial justice, joining this group is a MUST.

I’ll share more as I continue working my way through this and I’ll keep coming back. I’m waking up and I hope you are too.

July 5

We’re still in our pajamas at 2pm on the day after the 4th of July. The kids stumbled out to the family room earlier this morning for some screen time together, and now Boy is hanging out with one of his buddies while the girls have been cooking up a storm, eggs benedict and spaghetti carbonara. I’m alternating between doing my staring chair thing, cleaning up, and talking with some of these people here about the very real Greek tragedy – no matter which way you slice it – unfolding before our eyes.

Anyway, I’m not really a fan of the whole 4th of July thing, never have been, but I especially feel it this year when, clearly, we still have SO MUCH work to do. Land of the free? Not at all sure about that anymore. America is a great idea and all, but we ain’t there yet, not sure we ever really can be, and that’s all I’m going to say about that right now. You’ll be glad to know I managed to interrupt some of my critical reflections of the day so the kids and I could enjoy a few hours of swimming with new neighbors, I could take a long, sweaty walk, and our whole family, along with some old friends, could eat too much food and play card games. Thankfully, there were NO FIRES OR INJURIES, even though the some of the clowns around here were shooting crap off of the deck, and TWO different people, who shall remain nameless, walked straight through our screen door. The first time, the entire door was knocked out of the door frame, and the second time, after it had been replaced, the screen itself was ripped apart altogether. No alcohol was involved. 

Oh, and let us not forget the day to day bullshit that seems to go along with being human – when is one supposed to say STOP IT RIGHT THERE, THAT IS WAY TOO MUCH BULLSHIT? – as well as the stuff that keeps life real and keeps us on our toes, the stuff that makes us stronger if it doesn’t kill us first, that too. That last line is definitely bullshit.

Anyway, all in all, ok, fine.